What happens when you don't plan - the real costs of winging it

What happens when you don't plan - the real costs of winging it

Think you'll figure it out when the time comes? Here's what "winging it" actually looks like when your parent needs care—and why it's harder than you think.

Your plan is to figure it out when you need to. You'll deal with it when the time comes. You're smart, resourceful, and you love your mum - surely that's enough?

Here's the truth: it's not.

Not because you're not capable. But because the system is designed to be navigated proactively, not reactively. And the emotional toll of making massive decisions while terrified is something you can't prepare for in the moment.

Let's talk about what "winging it" actually looks like.

 

The hospital scenario

What happens

Mum has a stroke. You're at the hospital at 2am. She can't speak. The doctor needs to know: Does she have an Advance Care Directive? What are her wishes about life support? About feeding tubes?

When you don't have a plan

  • You don't know if she has a directive

  • Your brother thinks she mentioned something years ago, but can't remember what

  • Your sister is overseas and can't be reached

  • You're making life-or-death decisions based on "I think she said..."

  • The doctor needs an answer now

  • You'll second-guess this decision for years

What it feels like
Terror. Guilt. The weight of getting it wrong. Wondering if you're making the choice she'd want or the choice that makes you feel better.

If you'd planned, you'd know exactly what she wants. You'd have it in writing. You could advocate for her wishes with confidence instead of guessing in a crisis.

 

The burnout scenario

What happens

You've been managing. Working full-time, visiting Mum daily, managing her medications, doing her shopping, and coordinating her appointments. You're exhausted, but you're coping.

Then you get the flu. You're down for a week. Everything falls apart.

When you don't have a plan

  • No one else knows Mum's routine or medications

  • Your siblings don't realise how much you've been doing

  • There's no backup system

  • Mum misses appointments and runs out of medication

  • You feel guilty for being sick

  • You realise you can't sustain this, but have no idea what the alternatives are

What it feels like
Resentment toward your siblings who "don't help." Guilt toward your mum for resenting the situation. Exhaustion that runs bone-deep. Panic about what happens when you inevitably break.

If you'd planned, you'd have discussed who does what. Your siblings would know their roles. You'd have researched respite care options. You'd have permission to say "I need help" before you collapse.

[Link to: "How to ask for help before you burn out"]

The financial disaster scenario

What happens

Mum needs full-time care. The aged care facility quotes you thousands per month. You freeze. Nobody knows:

  • If she's eligible for government support

  • What level of Home Care Package she might be able get

  • How long the waiting list is

  • If her health insurance or life insurance can be used

  • What her assets are and how means-testing works

When you don't have a plan

  • You're scrambling to contact My Aged Care while also finding immediate care

  • You discovered she needed to be registered months ago

  • The waiting list for her care level is 18 months

  • You're paying full private rates because you can't wait

  • You're burning through her savings 

  • Nobody discussed whether she wanted to preserve assets for inheritance

  • You've spent hours, literally, on the phone, but you still don't have the answers
  • Family conflict erupts over money

What it feels like
Panic about the cost. Anger that the system is so complex. Guilt about spending her money. Fear about what happens when it runs out. Annoyance at family members questioning your decisions.

If you'd planned, you'd be registered with My Aged Care already. You'd understand the means-testing system. You'd have discussed Mum's priorities, preserving assets vs quality of care. You'd understand what her insurance helps to cover. You'd have time to navigate the system properly, rather than paying panic prices.

[Link to: "Understanding aged care costs - what you'll actually pay"]

 

The family fracture scenario

What happens

Mum's declining. You've been managing everything. Your sister visits twice a year and thinks everything's fine. Your brother keeps saying, "she seems okay to me."

When a crisis hits, they're shocked. They question every decision you've made. They feel guilty because they didn't know. That guilt comes out as criticism of you.

When you don't have a plan

  • They don't understand what you've been dealing with

  • They have completely different ideas about what Mum needs

  • Your sister promised Mum years ago she'd never go into a home (you didn't know)

  • Your brother thinks you're overreacting (again)

  • Everyone's making decisions based on guilt and emotion

  • Years of family relationships fracture under the pressure

  • You end up doing everything anyway, but now with added resentment and conflict

What it feels like
Alone. Angry. Misunderstood. Like you're being punished for being the responsible one.

If you'd planned, you'd have had the conversation years ago. Roles would be clear. Your siblings would have been part of the journey, not just the crisis. They'd understand what "managing" actually involves. Mum's wishes would be documented, not debated.

[Link to: "How to get your siblings on the same page about parent care"]

 

The system delay scenario

What happens
Mum falls and breaks her hip. Recovery is slow. She can't manage alone anymore. The hospital discharge planner says she needs a Home Care Package to be safe at home.

You call My Aged Care. You're told:

  • She needs an ACAT assessment first (3-6 week wait)

  • Then she'll be approved for a package level (Level 3 likely)

  • Then she goes on the waiting list (current wait: 14 months for Level 3)

  • Meanwhile, she needs immediate care

When you don't have a plan

  • She can't stay in the hospital (they need the bed)

  • She can't go home safely without support

  • You need to arrange private care immediately at $50-70/hour

  • You're paying thousands per month out of pocket while waiting for the government package

What it feels like
Rage at the system. Desperation to find immediate solutions. Financial panic. Guilt that you didn't start the process earlier when you had time.

If you'd planned, Mum would already be registered with My Aged Care. She'd have had an ACAT assessment before she needed it. She'd already be on the waiting list, closer to getting support. You'd have time to make good decisions instead of desperate ones.

[Link to: "When to register with My Aged Care - earlier than you think"]

 

The common thread

Every scenario above shares the same core problem: decisions made in crisis mode are harder, more expensive, more stressful, and more likely to be wrong.

You don't get to think clearly when you're terrified. You don't get to research options when the hospital needs an answer in an hour. You don't get to have thoughtful family conversations when everyone's in panic mode.

 

What planning actually prevents

Planning doesn't prevent your mum from ageing. You know that. It doesn't prevent falls or strokes, or dementia.

But it does prevent:

  • Making medical decisions without knowing what she wants

  • Burning out because you're doing everything alone

  • Financial panic and poor money decisions

  • Legal barriers when you need to act quickly

  • Family conflict based on assumptions and guilt

  • System delays that force expensive interim solutions

  • The crushing weight of "Did I do the right thing?"

 

Start now. Even messily.

You don't need a perfect plan. You need:

  • The legal documents in place

  • A conversation about care preferences and what she wants

  • A rough map of who's doing what

  • Basic registration with services you'll eventually need

That's it. That's the difference between navigating a crisis and drowning in one.

[Link to: "You don't have a plan. Most people don't. Here's where to start."]